{"product_id":"a-family-disease-a-memoir-of-multigenerational-ataxia","title":"A Family Disease: A Memoir of Multigenerational Ataxia","description":"Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate.\nCreighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother's suicide, Creighton's memoir finds striking similarities and differences in their lives and traces a lineage of family trauma.\nDrawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.\u003cbr\u003eASIN: 1476683182\u003cbr\u003eVSKU: BVV.1476683182.G\u003cbr\u003eCondition: Good\u003cbr\u003eAuthor\/Artist:Creighton, Dana Lorene\u003cbr\u003eBinding: Paperback\u003cbr\u003e\u003cb\u003eNote:\u003c\/b\u003e Any images shown are stock photographs and product may differ from what is shown.  \u003cbr\u003e\u003cb\u003eCondition Notes\u003c\/b\u003e: The item shows wear from consistent use, but it remains in good condition and works perfectly. All pages and cover are intact  including the dust cover, if applicable . Spine may show signs of wear. Pages may include limited notes and highlighting. May NOT include discs, access code or other supplemental materials.  \u003cbr\u003e","brand":"Blue Vase Books","offers":[{"title":"Default Title","offer_id":43534384463933,"sku":"BVV.1476683182.G","price":13.84,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0589\/4225\/9261\/files\/1476683182-0.jpg?v=1788218452","url":"https:\/\/www.bluevasebooks.com\/products\/a-family-disease-a-memoir-of-multigenerational-ataxia","provider":"Blue Vase Books","version":"1.0","type":"link"}