A 30 Year Journey with Myeloproliferative Neoplasms: What You Can Expect!: From Essential Thrombocythemia to Polycythemia Vera - Includes information on Myelofibrosis and Acute Myeloid Leukemia - 5638

New for 2025. This book offers an in-depth explanation of life with a Myeloproliferative Neoplasm (MPN), blending personal stories with practical knowledge to help you understand the challenges of living with this condition. Through heartfelt, sad, and often humorous anecdotes, I provide insights into the limitations associated with MPNs while offering encouragement and understanding. Inside, you'll find updated information about your diagnosis, current treatments, therapies, and clinical trials. There's a dedicated chapter on financial assistance and grant programs, as well as a comprehensive list of MPN specialists across the United States and worldwide. I share a detailed comparison of my bone marrow biopsies, taken 25 years apart, and include a copy of my most recent report for reference. I also explain therapeutic phlebotomies, highlighting the subtle differences in procedures across various locations. I use clear and precise language rather than statistics or medical terminology that you will not understand. I break down the definitions of key blood work that your doctor will frequently review, explaining what they reveal about your condition. You'll also find clear explanations of the Jak2 V617F mutation, Allele Burden, and the role of inherited chromosomes in MPNs. Each type of MPN—Essential Thrombocythemia, Polycythemia Vera, Myelofibrosis, Acute Myeloid Leukemia, and emerging variants—is thoroughly discussed, along with their unique symptoms. Drawing from 35 years of patient experience, I address common questions about drug side effects versus disease symptoms, including the persistent challenge of chronic fatigue. I also touch on the role of vitamins, diet, and anemia management in improving quality of life. This book is not just a guide but a companion for anyone navigating the journey of MPNs—patients and loved ones alike. You will refer to it often. I share deeply personal journal entries from when my symptoms began to impact my daily life, showing how seeking care from an MPN specialist transformed my outlook. With whimsical yet meaningful quotes and a wealth of information, my hope is to inspire optimism and a passion for learning about your own unique path.
ASIN: B0CCCMPBS4
VSKU: BVV.B0CCCMPBS4.G
Condition: Good
Author/Artist:Wingrove, Gloria S.
Binding: Paperback